Lots of letters! We ARE going to have the CT scan today – wahoo! They just can’t tell me what time. It’s 3PM, we still have a little time left before people start going home. Yeah – I am thrilled.
The PA mentioned BPD to me. Read about it here. Doesn’t it sound exactly like Bella? All the way down to the When to call the doctor (even the vomiting!). I think we are on the right road! Really it’s just me learning the right words to research – other names for BPD are chronic lung disease, which we already knew. But it sounds like albuterol should be added to her list of meds. I have been asked if she was on that several times. And time. Lots of time for her sick lungs.
This is Joyce. That is an excellent description of BPD. Probably the best I have ever seen in print. It does sound very much like what Bella is going through. I think I mentioned before that Sarah has been on Albuterol for the past eighteen years or so.
ReplyDeleteI hope the testing continues to go well and Bella is able to go home soon.
Bella could be a poster child for that couldn't she?
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