Bella’s Week

Just like everyone else, she is a junky, wheezy kid.  Tis the season!

She just loves her CPT! 

Huge!!! A first drink!  (There was about a drop of water in that cup, but still!!!)  Wahoo!

Eating carrots…she gets so excited and then eats maybe a teaspoon.  Oh well, it’s a start.

Then feeding therapy turns into play time

Hanging out with sister!  Love that smile!

She’s been doing a lot of sleeping of late – I blame all of the congestion!  We are slowly increasing her feeding rate in her G during the day.  Wow – I forgot how much she doesn’t like change.  For the second time in two weeks, the ER was mentioned for this bloated tummy.  But I vetoed that.  I stopped her feed, put her on pedialyte, gave her some meds, and hoped for the best.  Poor thing.  She worked through all that gas again.  I hate that each tiny change plays havoc with her system.  We are back to distended, but not hard.  We’ll figure it out together Bell.

A new experiment.  I haven’t been that pleased with her homebound teacher.  So I’ve decided to do a lot of supplementing.  I am so excited!  I spent the weekend gathering stuff for us to do school.  She is such a sponge.  More books and time together?  Sounds wonderful!