Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, December 15, 2013

Bella’s Week

Monday I made gingerbread cookies.  She took a nimble!  We had the hummus out for Brother’s feeding therapy and she just dove into the container.  Crazy kid! 


She’s getting better at these breathing treatments.  She’s not fighting like we are trying to kill her anymore! (Having something to watch helps!)


Friday was pajama day at school.  The librarian read them The Polar Express and then they decorated cookies.  She loved the sugar cookies and took one sip of hot chocolate according to her teachers.


Working on those hips – standing for a couple of seconds!!


Painting – love that she is “standing!”   Being measured for new AFOs – tall ones on both legs now.


Christmas play with the nativity and Brother.  The ornament she made in Speech.


Grandma and Grandpa stopped by to say good-bye before heading back to Iowa.  Be safe.  We’ll miss you!


Sunday, December 8, 2013


After lots of breathing treatments and lots of meds and lots of oxygen, my Bella is coming back!  So grateful!


Tuesday, December 3, 2013


Two nights ago I was telling Jason how grateful I was that Bella has been doing so well lately.  It's almost like having a normal life.  I love it!  I don't constantly worry about her.  Who would have thought we would ever be to this point, I said.

I guess I just needed a little reminder.


She's been junky for about a month, but so has everyone.  It's Fall in Houston.  Everyone has the sniffles.  But I would check her sats and she was never bad, a little lower than normal, but that is to be expected.

She got a new bug last week.  It kept us home from Church and Thanksgiving, but it was alright, nothing major.

And then last night, her body said enough of this.  Last night as I watched her sleeping, retracting, pulling, breathing fast, her sats falling, Jason and I holding her down to tape the nasal cannula to her face, turning up the oxygen again and again, I was reminded why I haven't cleared out her medical supplies yet.  

She is negative for RSV and both flus.  She just has the crude and it is wreaking havoc with her little body.  It has progressed to an infiltration in her lower right lobe.

Larger concentrator is on it's way. Oxygen at three liters, breathing treatments, steroids, strong antibiotics.  And she fights to breathe.

I was reminded why I love my pediatrician.  After examining her, she turned to me and asked, "Are you OK managing this at home?"  We talked about at what point she needs to be downtown.  I am grateful we have so much equipment.  Without it we wouldn't have a choice.  We would be in house for days.

I'm hoping she can turn this around quickly.  I HATE seeing her suffer.  I hate being the bad guy to hold her down for tests.  My heart breaks as she turns to me for comfort.  I will do all I can baby girl to help you get well.

Sunday, December 1, 2013

Bella’s Two Weeks

Love the love in these two pictures


Sweet girl!                          PT wants her in that walker!


The rest of Bella’s rewards from being a Kickstarter backer came – she loved the picture of Miss Rachel best!!


School work – she touched paint!  One of her sisters took this picture – they found her lining up popsicle sticks.  So cute


Playing with the water table.  She is so serious.