Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Wednesday, September 30, 2015

Ballet Girl!!

I signed little miss up for Miracle Dancers, a dancing class.  We have missed the first three weeks because of that great big pink cast (I couldn’t get her in her costume!).  So today I dressed her up and we headed for the studio.  Poor baby whimpered – she thought I was taking her to yet another doctor’s appointment, but NO!  When we got there and she saw all of the other ballerinas…heaven!  She pranced and spun all over.  All of the little girls LOVED her!  She’s so small!  She’s so flexible!  And she had a blast! 


Made this Mama’s heart happy to see her in there with everyone else!  Way to go my dancing girl!


After class, she was so happy, she did this little dance for me.  She is such a little miracle!

Sunday, September 27, 2015

Our Week

Well, Bella’s cast is still around.  She got sick the night before removal, so we had to re-schedule.  The hospital has already rescheduled that one as well.  They are afraid of her airway, so we will head downtown around lunch time on Monday  - third? fourth? (losing count) times the charm, I’m hoping!

I saw this cheap drum set at the store and got it.  They love it!  I thought Brother would like it, and he does, but it’s the girls who go crazy with it!


Wednesday, September 23, 2015

Camp Crooked Creek

Bella’s class went to Camp Crooked Creek.  She had so much fun!


The Selfie Queen – it’s too bad no one loves this kid!! Smile



Boating and fishing


Exhausted on the way home


Sunday, September 20, 2015

So Far in September

After her accident, her therapists brought over this giant very pink fox.  It now sits on her bed.  We brought donuts to thank them for all of the help they gave us!


Bella got another set of tubes – this time the longer lasting kind.  Hopefully they will last!


Playing in the backyard


We have been keeping a food log of all the food Bella does (and doesn’t) eat.  We’ll see what her dietician says!


Going out to eat


Grandma and Grandpa came to visit.  Saying Good-bye!



Playing with Sammi


Checking out Mom’s new office


Bella is currently obsessed with the show “Barbie, Life in the Dreamhouse.”  But she has a hard time saying  “Barbie.” So to ask for her Barbie show, she’ll bring me something Barbie related  - a Barbie doll, a closet, a car.  She cracks me up!  She has discovered if she sits on the car, she can make it go. :) So funny!

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At a Fall Festival

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Dancing to the music


That cast was supposed to come off on Friday.  There was no way she was going to sit still enough for them to remove it or the pin in her finger.  So Monday morning, we will head to the hospital for a little happy juice and the official removal.  (Here’s hoping it goes well!)

Saturday, August 29, 2015

Bella’s Little Adventure

It all started early Friday morning.  We were headed into therapy for all three little ones.  I actually remember thinking how well I was doing that morning.  Everyone had their braces on, everyone was dressed cute, everyone had eaten (a problem later), everyone had their separate backpacks with what they needed for that day (diapers for those who needed them, bus harnesses for those who would ride the bus home), everything was ready for our busy day.  I put the wheelchair together and strapped Bella in. Then I got Joy and Alex out of the van.  I am always on high alert with the three of them by myself, but especially in a parking lot! I was keeping an eye on Alex and Joy, to make sure they stayed safe, as I reached back to shut the van door.  It wouldn’t fully close – weird.  I glanced back at the door to see Bella's finger wedged in there.   Quickly, I threw the door open and looked at her finger.  The whole first joint was crushed.  It looked like the nail had completely come off.  I found out later, through x-rays and the hand surgeon, that the bone had snapped up out of the skin, pushing the nail and nail bed out of its way in its journey.  And then the blood.  Wow – blood all over her, blood all over me.  At this point the mother of another patient came around the van to put her son in her car, she saw our situation and asked if she could help.  Yes, please! Go get Margaret and Christie, our OT and ST.  She was gone and then they were all back. I’m so grateful!  Our wonderful therapists took Joy and Bella and spoke directly with the doctor at the Urgent Care.  He, the NP, and the two nurses immediately helped us.  Bella, by this point, was freaking out.  She didn’t want anyone to touch it, and we all wanted to clean it up.  The doctor said it would require a nail bed repair and she would require sedation.  He sent us on to Kosair Brownsboro – a satellite children’s hospital here.  Joy and Alex stayed with our therapists. I called Jason who headed out to grab the kids.  At Brownsboro, they did x-rays and determined that she had broken her finger.  They called the hand surgeon, but because Bella had eaten just an hour ago, they couldn’t put her under to do the surgery. They sent us downtown because at the big hospital, they can operate 24/7, instead of only during the day, like at the satellite hospital.  We had to wait the full eight hours before her surgery.  No one wanted her to aspirate on her breakfast, especially since aspirate pneumonia (coupled with terrible pulmonary hypertension) is what caused us to end up with a trach for four years.  At 6:30 PM, she headed back for surgery.  She was so brave throughout the day.  She whimpered now and then, but she wasn’t hysterical.  I was so proud of her.  The hand surgeon showed me the x-rays and explained how she pinned the bone and did the nail bed repair.  She cast her past the elbow so Bella would leave it alone while it heals.  We’ll have that cast for three weeks.  In recovery, her stats were low.  Fortunately, no one panicked.  I explained and they believed me and we got to go home.  So very grateful! Twelve hours after hurting her finger,  we got into the car to head home.  What a day!


Jason brought me a cupcake (it was super yummy)


Waiting for surgery (good meds on board)


All done, let’s go home (Love the cute heart on her cast!)

A cute card from her class