Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Saturday, December 13, 2014

Visiting Santa!

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We visited BassProShop to visit Santa’s Wonderland.  So fun!

Wednesday, December 10, 2014

Riding a Bike!

Look what Miss Bell got to do in PT!  She is amazing!  I was so proud of her!

Tuesday, December 9, 2014

Life with Bella

Results from her sedated ECHO were amazing!  Her valves are leaking, we will continue to monitor.  But her pulmonary pressures are NORMAL!  Amazing – that is a miracle!  I am so grateful!

Sweet Bella was sent home on Monday.  She kept crying and they were afraid she was in pain from her surgery.  As soon as I saw her and heard her cry I knew what was wrong – poor thing was constipated!  It’s a chronic problem for Bell, add in anesthesia and you have a recipe for disaster.  I had increased her laxative, but evidently not enough!  As soon as I got her home, we got her cleared out and she was happy as a lark.  I texted this pic to her teacher who couldn’t believe it was the same kid they had just sent home! :)

Signing Time Christmas and a Christmas card from Miss Rachel came for Bella!  So thrilling!

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OT eval  She loved the swing!  I loved the circle she drew!  I’ve been trying to convince school that she can produce a circle, she just likes to hide her abilities! Ornery girl!

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Playing with Daddy

Friday, December 5, 2014

Bella’s Surgery

This morning Bella had surgery – tubes, hernia repair, and sedated ECHO. 

The ENT said that her left ear was full of thick mucus and that poor ear drum wasn’t able to vibrate at all.  So yea for tubes!  Hopefully this will help with her hearing and speech!  She also said if she sees that thick mucus again (she had it last time as well), she’ll have to use longer lasting tubes.  OK.

Hernia repair was just something that had been on the bottom of my to-do list.  One of those, the next time she’s under and it’s not critical kind of things.  It was from one of her many chest drain tubes.  Done – no more hernia!

And the sedated ECHO just so we could get good readings since she thinks they are trying to kill her whenever they do an ECHO when she’s awake. She fights like a demon!

When we walked into the surgical waiting room we were greeted by two beautiful pictures of Indian Paintbrushes and bluebonnets!  I knew then that was a tender mercy!  Bluebonnets and Indian Paintbrushes in Kentucky?  My Texan pictures made me smile!  Bella was all smiles.  She had no idea where we were!  She smiled as we waited and took lots of selfies to pass the time.

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Oh, but once they took us back and she saw all of the equipment, she knew what was coming.  What a sad baby!  The poor anesthesiology team was nervous of her history and insisted she have a breathing treatment before surgery.  That juicy cough that she’ll have all winter wasn’t making them feel any better. I’m just so grateful this is the little girl I was bringing to them.  This healthy, beautiful, behaving little girl.  I knew she would be OK. She is in such a good place right now.

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They gave her some versed to settle her a bit before they took her back. Oh Versed!  Baby girl used to have such a high tolerance for you! Like adult doses tolerance.  As the versed took effect, sweet girl faded into versed girl.  Oh, that look on her face and I was right back in the ICU with my six month old baby girl – vacant eyes, mouth open, trying to fight through it all.

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But Bella is a trooper and she snapped right back after surgery.  This was her first intubation after decannulation – another reason they were nervous!  She did have some obstruction but they worked through that.  I’ll just remember for the next time she goes under.  Within half an hour she was picking out shows on her ipad and we were ready to go home.

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So proud of you, my Bella!  You amaze me every day!

Sunday, November 30, 2014

Thanksgiving Break

Thanksgiving brought lots of family to our house.  Bella got to show off her viola skills and play ball with Uncle Nathan, Daddy, and sisters.

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Decorating the house for Christmas – love this sweet girl!

I love this last picture of Bella.  It looks so much like our friend Zoe.  Love it!

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Signing Time Christmas!

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So proud of her – she is usually too terrified to sit on the piano bench, but she did it!

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A swing set!  She loves it!

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Thursday, November 6, 2014

Bella’s 6th Birthday

Birthday picture                      (and the infamous selfie)

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Waiting for the bus in the morning, we made this video.

I sent cupcakes to school.  I wasn’t allowed to come up, but her teacher promised to send pictures!

Present and Cake Time

Dress up items                                       Joy modeling the ear rings for Bella


Her own head phones and mp3 player loaded with her favorite artist’s music – Britt Nicole!


Cake!  She blew out her candle all by herself  - but we didn’t capture it on video – so sad!


Away from the hustle and bustle of everyone, she gave me her smile

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Grannie Annie, Bella’s biological paternal Grandmother, sent Bella a pop-up book!  So fun!

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How we love you dear Bella!  I just can’t believe that you are six.  I keep thinking of the poem Now We Are Six.  I just feel like it’s such an accomplishment!  You are here and doing so very well.  I am amazed by you every day!  I love you sweet girl, all 26 pounds of you!


When I was one,
I had just begun.
When I was two,
I was nearly new.
When I was three,
I was hardly me.
When I was four,
I was not much more.
When I was five,
I was just alive.
But now I am six,
I'm as clever as clever.
So I think I'll be six
now and forever.

Author: A.A. Milne

Friday, October 31, 2014

Halloween Party at School

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Bella had a good time at her party playing place the glowing bracelet on the pumpkin, pin the witch on the broom, and Halloween Hokey-Pokey! She was very serious about decorating her pumpkin!

She didn’t actually Trick or Treat that night, though.  By the time it was time, she was sound asleep snug in her bed. Some of us are asleep by 5:30! Glad we went to those Trunk or Treats!

Happy Halloween little Bella!