Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, November 29, 2015

Not how I had hoped things would turn out…

Bella’s cast had been stinking – I mean from two rooms away stinking!!

Last Sunday we took Bella to the ER – they told us her cast was contaminated and to go to the doctor the next day.  Monday we went to the doctor.  They were not happy with the ER.  That cast came off and we headed downtown.  Her incision had dehissed – completely opened up – and it was very, very infected.  She had emergency surgery for irrigation and debridement.  We don’t know what this means for her knee.  We will just have to wait and see.  Infectious disease is now involved with our care.  They are treating her as if she had a bone infection.  We move forward. After a rough night of high heart rates and low oxygen stats, I did a lot of quick talking and got us home for the holidays.  She just really hates being in the hospital.  (Heart rates should not be in the 150s when you have that much pain med on board!)



Bella spent her Thanksgiving in my bed, but at least she was home!


Saturday we got to see our old PT from Houston.  She was driving through, so we meet up for breakfast.  So nice to see her and her family!


Friday, November 20, 2015

Bella, Bella


Bella was back at Dance this week – three weeks post op with a totally new knee – and she LOVED it!


And then Friday was a Dynavox evaluation.  Yes, she has an ipad with proloque that we bought her, but the teacher has found it difficult and time consuming to use, so it’s not being fully utilized.  Sad.  The dynavox is covered by insurance (yeah!) and is easier to program and comes with lesson plans.  Her OT and ST sat in on the eval.  I am grateful they were there, as this will effect all of our lives.  We have been approved for a 30 day trial – wahoo!  So we’ll go forward with this. 


Tuesday, November 17, 2015

UofL Community Band

Brother’s school sponsored a fun evening with the UofL Community Band and dinner from Papa John’s. Bella LOVES pizza!   It is seriously the thing she will eat.  They played Christmas/Hanukkah/Frozen music.  They were really good!  Then they had the kids come in and sit throughout the band.  They were so kind!  The last song, he let the kids conduct.  It was a fun evening for the family!


Tuesday, October 27, 2015

She should walk!

Today was the long awaited second knee surgery on Miss Bella.
When her surgeon came out, she was so confident.  "She should walk", she told me.
Walk - no wheelchair.
Walk - that means she can dance!
Walk - free, totally free!

Bell, today as we sit in yet another hospital room, me with my microwavable meals and freezing to death, and you with your ipad, I'm just in awe. You did it, little one.  One by one, you have checked off each of the issues giving you problems.  Nothing stops you.  So it's taken seven years, so what? You are amazing to me, little one!!

May you heal quickly and finally be able to jump and run!
Love you forever!

Friday, October 23, 2015

Eye Doctor

So the doctor told us today that Bella needs to wear her glasses all the time, no longer when she is doing close work.  The prescription will help relax those muscles (decrease the crossing) and magnify things she sees (like in class work).  He also felt that she would like wearing them.  I did my best to keep a straight face.  Let the battle begin!


Sunday, October 11, 2015

Monday, October 5, 2015

Weekend Stay in the Mountains for Mama’s Bday

We saw wildlife

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Explored old buildings

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Played in the hot tub


Played pool


Watched TV


Hung out with sister



Had a bonfire – Bella was present with smoke and everything!  I can’t believe it!!


So  amazed by all the normal things you are doing lately, Bell!