Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Monday, January 23, 2017

Miss Independent


My Bella is very strong willed – which is a good thing.  It kept her alive despite everything that she had to go through. 

But now, I may just go bald as I pull my hair out!


She wants to do everything BY HERSELF!

Thankfully, her bus driver and school have noticed this as well, “Ah, I see Bella dressed herself today.”  Yeah.  Her pants were backwards.  Her coat was on upside down.

Today she was ready and I went to do a last second check and she had taken everything off and was trying to put on her ballet costume.  Well, sorry, but your school has a strict dress code, sweetheart.

Love my strong willed girl!

Tuesday, January 17, 2017


Today we visited with Cardiology.  I didn’t realize I was holding my breathe till we left.  Great sigh of relief!   Our girl is doing well – exactly the same as last year.

Mild to moderate regurg in the mitral valve

No pulmonary hypertension!

Everything is beautiful!  So so so so grateful!

And she’s getting better at the visits – I had to sit on her to do the EEG, but she allowed him to do the ECHO.  So very grateful for a kind and patient cardiologist!  :)

Happy report – yeah!


Wednesday, January 11, 2017

Happy girl

Finally back to dance class!!
And to top it off, a cupcake!!!