I feel like we are living in two different worlds – besides home and hospital life – Bella just isn’t doing that great. Her vent settings keep getting turned up. She hasn’t been on these settings since before her surgeries. The PCU docs keep telling me if she doesn’t turn around, she’ll have to go back down stairs. We have done another STAT chest x-ray. We’ll see what it says.
On the other hand, we are in the PCU – trach teaching land. I am learning all about trach care and suctioning. I am being quizzed about my plans at home. I answer the questions with what I’ve figured out, but part of me is screaming – she’s breathing at 90 breathes per minute, why do we care? Anyway, we finished her room last night. I’ll have to post some pictures when I get home. It is cute and functional – perfect for Bella. I just really hope we can use it…..sooner than later.