That face about sums it up. She is sick and less than thrilled. Every therapy was cancelled this week. I did allow music therapy – her favorite half hour of the week – and this is her face.
It’s one of those weeks that drives me crazy and makes me grateful. The nurses and I would stand there and discuss what to do. She is sick enough for the ER. But what can they do that we aren’t doing? We opted to keep her home. CPT almost constantly. Breathing treatment after breathing treatment after breathing treatment. Pedialyte for low BP and fever. Back to formula. Vomiting because there is just too much junk. Blood because there is so much irritation. Just a long, tiring week. Grateful she stayed on the line and didn’t tip over.
I am amazed with her. Jason told me this morning, “She is the most amazing person I have ever meet.” She is. She just lives and fights and wakes up and does it again tomorrow. I was comparing her to August 2009. She has come so far! We would not have been able to stay home back then! You are doing it, Bella. On your own time table, you are getting stronger and stronger and I for one am so very, very proud of you!