- Some people see Bella and see a syndrome
- Some people see a medical record number
Sometimes I feel like Horton (from Horton Hears A Who). Am I the only one that hears her yelling, “I’m here! I’m here!”?
I comfort myself in knowing that she is a beautiful, alive, and vibrant soul. Everyone who takes the time to know her, loves her. Who wouldn’t? She is my Bella and I love you babe.
Monday she had one of those icky viruses going around. We didn’t even bother to dress her up, just new jammies. She cried and cried. I gave her this puzzle and snapped the picture and it was back to crying. But by Friday she was her happy self again.
We moved her bed so she can look outside and get some vitamin D. Of course in these pics, she is admiring herself in the mirror. Can’t you just hear her say, “Yes?!?!” in the first one?
Playing in therapy. I was blown away that she even tried to do these pegs in a bottle. And we took her outside – beautiful outside. The girl loves to swing!
Reading with Sissy
We went to a post op with ENT this week. And I spoke with the director of outpatient services. Sorry, but if my child’s wheelchair doesn’t fit through your waiting room, then NO, you are not handicap accessible. He assured me that would be looked at and fixed. Sigh. At a children’s hospital? New campus. Not a good excuse. Anyway, ears look good. Wants an ABR. Oh, and she lost weight again. Another sigh. But meanwhile she is beautiful and we love her.