She wants to hold onto things now. Here is her left hand holding her hair. Her right hand is never far from her ladybug.
An hour in the bouncy chair while doing her trach collar time and an hour in the tumble form in the afternoon. Bella is doing so well.
She looks so grown up to me here! Where is the baby?
Bella gained last night to 5.3 kg. Slow, consistent weight gain! So far, so good on the switch to diurel from Lasix. That’s good. Tomorrow is her hearing test in the morning and then they want to pull her PICC line. So I asked (since I usually get angry when they stick her little foot) if they could DC all of her labs then. And, surprisingly the doctor was fine with that. All of her labs from yesterday looked wonderful. Good. One less worry.
I am now doing her trach care by myself – yeah! I just tack that on with her bath and other care. The discharge planner has been working with us (what a good feeling!). They are working on finding a pharmacy that will compound her Pulmonary hypertension meds and give her liquid Viagra. We have our equipment company and our nursing company. They are working out hours. Everyone is comfortable with us going home because we have taken advantage of all of this time in the PCU to figure out all of her care. My confidence is growing. I am still nervous about the transition and having strangers in our home, but we’ll adapt. Tuesday or Wednesday of next week!!
Shawn, our wonderful librarian, stopped in today to say hi. That was a wonderful visit. Her Uncle is at Methodist hospital and could use some prayers.
The eye doctor has been by to see Bella again. The movements of her eyes are so much better than when we were in ICU, but they are still present and we are off all narcotics. So they would like to see an MRI. It does a better job looking at the brain stem and cortex of the brain. Hmm….
Sorry this post is late, but I wanted to wait until after I changed her trach. I did it! I, Shelly, changed her trach for the first time today. Honestly, it wasn’t that bad. Thank goodness. Now barring her getting sick or plugged, I don’t have to do that again for a month. Yeah!