This is what Jason told me last night as we discussed the latest from the doctors about our Bell. It’s true. Unless she is in serious pain, she is always smiling. She has such a bright and sunny disposition. I have much to learn from this small sweetheart.
She has recovered from her viral thing. She has some new viral thing – runny nose, sneezing, coughing (sounds like a cold to me). We spent two days down at the hospital (outpatient – yeah!). We saw her pulmonologist and her cardiologist. She had her GJ replaced with a new one. She had labs – seriously wish we had a portacath. She had an ECHO and x-rays.
Long and short of it, her heart is doing OK. It is not the culprit. Her valves are only mildly leaking. Her misshapen valve is working adequately. Her pressure are OK. Her right side isn’t too big. Her lungs are horrible. So her cardiologist is calling her pulmonologist. Hopefully they can come up with something – anything. Her cardiologist is increasing her heart med. If nothing else it helps her lungs. She is doing worse now than in the fall with her O2 needs and her HME trials. Why? Is it the weather? Sigh.
But enough of my rambling….look at the cute girl who happens to like her ventilator, nurses, EMTs, and paramedics.