Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, February 26, 2012

Bella’s Week

feb 26 018


That face about sums it up.  She is sick and less than thrilled.  Every therapy was cancelled this week.  I did allow music therapy – her favorite half hour of the week – and this is her face.


It’s one of those weeks that drives me crazy and makes me grateful.  The nurses and I would stand there and discuss what to do.  She is sick enough for the ER.  But what can they do that we aren’t doing?  We opted to keep her home.  CPT almost constantly.  Breathing treatment after breathing treatment after breathing treatment.  Pedialyte for low BP and fever.  Back to formula.  Vomiting because there is just too much junk.  Blood because there is so much irritation.  Just a long, tiring week.  Grateful she stayed on the line and didn’t tip over.

I am amazed with her.  Jason told me this morning, “She is the most amazing person I have ever meet.”  She is.  She just lives and fights and wakes up and does it again tomorrow.  I was comparing her to August 2009.  She has come so far!  We would not have been able to stay home back then!  You are doing it, Bella.  On your own time table, you are getting stronger and stronger and I for one am so very, very proud of you!


Junior said...

so sorry you are sick Bella, but you are such a strong girl. Feel better soon, hugs

Jeana said...

Praying that she gets better soon. Kaelyn has been sick too and we were blessed to keep her home, even though like you said with Bella (But not near as bad as Bella, poor girl) she could have been in the hospital. She did so well though and i KNOW that she is much happier at home when she is sick than in the hospital.

Heather said...

As usual I have had some catching p to do on my Bella. And finding her sick is not how I wanted to find her. You can see it in her eyes. I recognize those eyes and they make me sad. However, as I was scrolling through the last few posts, I just kept looking at al the living and loving that goes on in your home.So, so much loving, And playing and experiencing. And snuggling ... isn't it nice sometimes that they are small enough t carry in a sling?

Sending our fighter girl prayers of healing and lots of love from California.