Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, November 4, 2012

Bella, Happy Bella

Wow – who is this kid?  Bella is doing awesome! 

Now taking baths is part of her nightly routine – and she loves it!

Music therapy – as much as she loves Miss Angela, she was not going to put those little toys on her fingers (sensory), so sissy stepped in to help.


Playing with chalk outside;  Laughing with her sister – love how she covers her mouth when she laughs!


She has learned to laugh, truly laugh.  And it has won over our souls!  Everyone loves to listen to her laugh!

Working, as ever, on those sensory issues.  Her OT can get her to do things, like touch paint and get dirty, that no one else can.  Yeah!


Dancing at sister’s party


Look at this!!!!  She is so determined – despite her knees and her ankles – she tries again and again.  And Saturday night she did it – not once, but three times!  We all yelled and danced.  She stood!  My baby girl stood!

Pulling up                          Success!


I was talking to one of her nurses and she was telling me what a miracle Bella is.  Three months ago, she said, I would never have believed that she would be here.  It’s nothing short of a miracle, she said.  It’s God shining through her.  I always feel bad when I hear that because I think of all the little ones that don’t make it.  My heart pains with Survivor Mommy Guilt.  But I am, nevertheless, grateful.  Who would have ever dreamed that she would be doing this well?  Definitely not me.  I am the Mama, (confession time) who has prayed in the past for her to die.  I did.  Why should she suffer so much?  What was the point?  Why should she lay there day in and day out struggling and fighting for a breath?  And here she is.  The Amazing Bella who defies me every day.  Look at me, Mama!  Not only am I going to live; I am going to thrive!


Heather said...

Who is this girl?

A girl who embodies fight and determination and an extraordinary will to survive. Her message is one of hope and faith. Her story a gift to be shared. Her life, indeed a miracle.

I know that cloak of survivor mommy guilt. I know it well. Especially during leukemia days. But we need to turn that guilt into a mission of sharing our childrens remarkable journeys to allow others to see the possible that comes with the seemingly impossible.

She is incredible. I watch with awe and joy as she makes her way.

Lacey said...

I get survivors guilt often as well, its part of this journey unfortuntely. I've been wondering about my amazing Bella, and she is amazing indeed!