Bella’s Week

With her sisters home from camp, Bella has been learning the camp songs.  She loves them!

Working, ever working on that crazy leg.  If she twists her left leg like crazy and spreads all of her toes in impossible angles, she can support the weight of her body.  Tuesday’s surgery is the first step towards hopefully fixing that right leg.

Playing on the trampoline.

So cute – the girls “playing cards.”

We went to see Monsters University.  We were a little worried about Bella, but she did great!  She would just roar right back at the screen.  Good thing she and Daddy have practiced her roar!  She also ate popcorn!  It was amazing.  She just sat there eating piece after piece.  Who is this girl?  So exciting and fun!

Bella’s Week

Bella had pre-op downtown for her knee surgery that’s coming up.  So exciting that we are starting down the road that may ultimately lead to walking!    She loves to dress up!

   

Trying new food                     Singing with sister

At the park

Talking during therapy             Showing off her glow stick bracelet

Love this!  A blanket from her Grandmas!!  Grannie Annie, Bella’s biological Grandmother sent the fabric and Grandma Ball finished it for her!!  She sleeps on the pillow Grandma Turpin made her.  She is surrounded by Grandmotherly love!

So proud of my girl!  We went to a viewing at a funeral home.  Unfortunately there were a lot of smokers there.  The funeral director cleared out the entrance.  We waited a bit for the smoke to clear and then brought Bella in.  There was a little of that residual smoke odor that clings to people.  We kept her away from everyone.  But she did it!  A year ago she was on oxygen with that amount of residual smoke.  She is doing so much better!  She did fine.  She didn’t desat.  Way to go my miracle girl!   (that’s a pink wafer cookie in her hand.  She alternated between sucking on it and using it like a phone)                                 Afterwards, playing with her cousin.

  

Music Therapy

We had our last in home Music Therapy session today. Next year Bella will attend school :( and see Miss Angela there.

Because she loves it and we want to be able to remember the songs all summer. I recorded so many today so we can reference them all summer.