Bella and I are home again after spending all day at TCH. It’s always an adventure to travel with that many people by ambulance. At least I don’t have to worry about the traffic! And since she’s on a stretcher, she’s usually taken back faster.
I must admit that I have been losing a little of my hope. You have probably noticed all my posts about hope. But she has not been doing well. She has been getting worse, not better. She was becoming more and more vent and oxygen dependent. All progress we had made was just gone. Changing her shirt caused vomiting. It wasn’t looking good. But today we have figured out something. Today I am full of hope again. Bella is getting too chunky! Way too chunky! In the last three weeks she has had an 8% weight increase and has not grown any in length. Her tummy is getting in the way of proper ventilation. A weight problem I can handle. Especially a weight problem brought on by the nutrition department, so they re-visited with us today and we have a new plan. Hopefully, this decrease in calories will slow the weight gain, but still allow her length to increase. Grow, my chunky monkey, but not in girth. :)