Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Friday, October 23, 2009

Not Where We Where Hoping to be……

We had a standard follow up appointment with Pedi. Surgery today.  We talked about her vomiting.  She decreased her calories again.  The poor thing has gained another 3/4 pound in one week.  We talked about options for her poor GI track.   Mostly options for the future.

Then as we were packing up to go home, Bella decided to have another episode.  She has been having these more and more often.  She desats and we turn up her oxygen.  Eventually, we turned down her O2.  But the trend has been disturbing.  She has gone from being on room air to being on 2 liters of oxygen about all the time.  Well, today she was requiring 4 liters to maintain sats in the low 90s.  Instead of going home, I decided we would go upstairs to the Special Needs Clinic and visit her doctor.  Poor Bell.  Long and short of it, Dr. Louis, her nurse, the EMT, the paramedic, the home health nurse, and I escorted Bella to the ER where we ran more tests and were then admitted to our home away from home, the PCU.  We were once again greeted with open arms.  I love the people here.  They are so kind to our sweet girl.

I’m hoping we can figure this out.  It’s not what I had planned for my weekend, but I’m so hoping that we can get to the bottom of this.  Is it her heart? Her pulmonary hypertension?  Or something new and fun that I know nothing about?   Here’s hoping for a quick and informative stay!

7 comments:

Cammie Heflin said...

Oh Bella Bug, you poor little thing! I hope they find out what's going on soon pretty girl!

Heather said...

Praying for answers,a quick remedy and a pass to home sweet home.Miss Bella, you just like to keep momma on her toes,don't you?

Lacey said...

Ugh, GI stuff is making me crazy to. Hopefully you get things figured out so you can get home. Its nice to have things figured out it just sucks to be in the hospital. I'm hoping Jax has a good night so we can get home tomorrow.

Junior said...

Lots of prayers for Bella, hope they can figure out the problem and get you home very quickly.

Michelle said...

my goodness, so sorry you will be spending at least part of your weekend there. HOpe they can figure it all out quickly. Oh miss Bella, you lead the way sweet thing. Prayers for you all!

Gabriela said...

I'm with you!
Gabriela

Kathie said...

So sorry Shell. Hope that you will be able to figure out what is happening quickly and you are able to be home soon. Love ya.