The Cub Scouts from church asked if they could come meet Bella. I gave them a quick lesson so they wouldn’t be scared of all of her equipment and then they got to meet our girl – yeah! I was glad. The more people that get used to her, the better. She won’t live in her room forever. I’m hoping one day to have her totally integrated into our lives – outside the house as well.
My PT isn’t thrilled about exercise saucers but I have one and we used it for the first time this morning. I was happy that her trunk control was good enough to go in there and play with new toys. She loves to play. I’m always trying to think of ways to keep her entertained.
I love that these girls love each other. Playing and talking together.
Our doctor’s appointments this week: Eyes, GI, and labs
Eyes – Far sighted. If we don’t see a big improve in an year, then we’ll get glasses at that time. By the way, she HATED that appointment! Eye drops and bright lights – no fun!
GI – Not good news. She put her on another med to move her food along quicker. She has a slow moving track. Her bowels sounds are hypotonic – just like the rest of her. :) She ordered another Upper GI. And she said that it’ll be years, if ever, that she can eat by mouth. Oh. Not what this Mama wanted to hear. Oh well, she is a sweet beautiful little girl. If she doesn’t eat by mouth, she doesn’t.
Labs – what a trial these are! They wanted the home health nurses to start doing them. Small problem. These nurses don’t do sticks often and Bella is a hard stick – even for seasoned pros. So two different nurses tried. All they succeeded in doing was making bruises. Then we went to TCH and had them do it. They have a 2 stick policy – they don’t want to have to stick more often than that. It took 45 minutes and we still didn’t have all the blood we needed. We have more labs for later in the month. We’ll try to finish our labs then and get the news one all at the same time. I wish this part was easier for her. Breaks my heart.