On Wednesday we went to pulmonology. He was so encouraged by her progress that he gave us some pretty amazing orders – orders that caused me to almost hyperventilate!! He wants us to work up to 12 hours on the HME and 8 of those on the Passy-Muir. Oh – my head felt light, my pulse quicken. I was amazed and totally frightened. But she is showing me that she is ready to take the next step. We used to do her HME times 2 hours 2 or 3 times a day. Yesterday we upped that to 3 hours. And…she did it!!! Her nurse and I were both so anxious that last half hour. Her respiration rate was getting so high, but her heart rate and O2 stats were beautiful, so we let her do it. Wow, baby girl!
Then today the Passy-Muir came. I popped it on, and she has been talking for the last hour. My goodness, little one!!! Congratulations on breathing. Congratulations on finding your voice! We are all smiles around her! We love you!
I need to get the passy muir just for me, even though he can only use it for like 10 minutes because he needs oxygen! I've heard that sometimes kids don't tolerate them on either, that it takes time. Bella is just a rock star!
That was just beautiful,and her voice,even more so.Seriously,look at your miracle girl.I remember when I first found Miss Bella,way back when,such a fragile little thing,trying to find her way and look,she sure is doing it,finding her way,Slow and Steady.
A wonderful video, love hearing Bella's voice, its beautiful
I AM SO HAPPY!!! What an awesome post!! Bella you go girl!!!
Oh those are the sweetest sounds ever! Kaelyn is making the same ones right now as she is rolling around the floor, and I've never been so grateful for them. You go Bella, keep shouting to the rooftops!
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