Look at this kid. In the last two weeks she has undergone a transformation. She has grown up! She is no longer content to be in bed or in her room or to be a baby. She is almost two and she is determined to prove it. She will tell me and her nurses “No!” by shaking her head back and forth with great enthusiasm – but she strangely doesn’t understand that same “no” when we tell her not to pull hair. :) Ornery kid!
We went down to the beach for my sister’s birthday – and we brought Bella. She did really well. She needed some oxygen during her nap which she hasn’t needed in a while and she has a slight temp this AM – but she went. She saw. She lived! Can’t you just hear her thinking what is this stuff in the second picture? She was only out in the sun for a little while. That skin is not used to the sun, especially the Gulf Coast sun!
Playing with her cousin and getting ready for an IPV treatment – didn’t know that one was being taken. :)
This is so exciting! She is growing up and becoming a person, not just a sweet little baby that I have to fight to keep alive. I am actually having a hard time wrapping my head around discipline for Bella and planning for the future. As one of her therapists said, “You haven’t allowed yourself to go there, have you?” Um…no. I still find myself liking a song on the radio and thinking, “That would be perfect for Bella’s funeral.” I think Bella wants to stick around. I don’t think I’ve given her enough credit. She is here to stay, she says, and I had just better get used to it! :)