Bella has a new PT. She is working her so hard! She wants us to work hard on getting her to keep her legs straight rather than like a frog all the time. She says that when Bella lays open like that all the time, it shortens the outside muscles and lengthens the inside muscles. Her poor kneecap is now up above her knee and on the side. We're working on that now.
Bella wants to eat so badly – she isn’t cleared medically, but she wants to. So we left her have a few drops of water, which she loves. Today we let her play in jell-o. The OT says it’s great for the tactical experience. Lucky for us it totally disintegrates before she can get it to her mouth, but it does give her some taste on her fingers. She loves it!
Another big girl experience – Developmental Services let her play in beans! How exciting! She loved putting her feet in those beans!
Watching the Texans win with Daddy!
Bella is such a puzzle right now. When she feels well, she wants to play. She wants to be in there with everyone, doing big girl things. But when she isn’t feeling well, the littlest thing is just too much for her. She goes from 3 1/2 liters of oxygen to off the vent in one day. We just have to watch her and let her lead us. Love ya big girl!