Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, October 3, 2010

Happy and Junky


Bella is such a funny little girl.  My camera flashes once and then takes the picture.  She has learned to smile whenever she sees that flash.  Makes me laugh. 

This poor kid.  She just can’t kick whatever this is.  I’m beginning to think it’s just allergies.  She is so junky that she has to be on the vent and requires oxygen support for most of the day.  We try to take her off daily.  We’ll wait till she has weaned from her oxygen and then let her heart settle down (so sometime in the afternoon) and then take her off.  She is lasting about half an hour before her coughing spells just won’t stop.  So we stick her back on.  Poor kid.  But as soon as she’s back on and she settles down, she is all smiles again.  Amazing kid!

Her ECI teacher said we have to come up with a transition goal since she is 23 months old.  Wow – that threw me for a loop.  Right now her goal is to continue her private therapies.  I’m not comfortable sending my vent dependent baby to public school.  So we’ll see what one year brings us.