Pulmonologist and the rest of her week

I love that the girls are starting to play together – truly a dream come true for me!

Then on Wednesday we had to drive downtown to see the pulmonologist.  My babysitter was otherwise engaged, so we brought Joy along.  They enjoyed watching Strawberry Shortcake for the hour drive.

Her pulm has no idea really what is causing her to still be on the vent.  He had thought that she would be decanulated by this past summer.  But Bella has always written her own book.  He has asked us to go see the ENT.  He wants some tests done.  And he wants another brochoscope.  We’ll see what comes of it.  At this point, I’m never surprised that the doctors don’t have answers.  Bella is unique.  She walks her own path.  Since we were down there, we also had her GJ changed and tried to get blood again.  Poor baby. 

He also told us about the blood test that should be approved in 2011 that will be able to tell if the baby the mother is carrying has Down syndrome.  A simple blood test.  In my mind this will mean more abortions.  I came home and looked at Joy and Bella.  I can’t imagine a world without almond shaped eyes and the innocence and sweet presence of these little ones.  I wish there was a way to educate people about adoption.  I wish a lot of things.

Unfortunately, the weather on Wednesday was yucky.  So for the next couple of days Bella paid for that visit.  Thursday she just stayed blue all day.  Friday she was just really yucky looking and by Saturday she was ready for her birthday!