Quick note to myself – never allow Bella to undergo a barium study and then receive anesthesia in the same week – not good on the bowels. Eight days with no bowel movement is not a good thing. A week with that much miralax, glycerin suppositories, and milk of magnesia – not a happy thing. A week of painful cramps with no results – quick way to break a Mama’s heart. We think we are finally seeing the light on this issue. Just another thing for me to remember in the planning department for the next time.
On a happier note, although these off and on fevers continue, her lungs have never sounded so good. She has been able to get off the vent for a couple of hours a day. It’s also been very mild weather here – which has been great for Bella.
Intently watching her sisters swing outside!! Chowing down on an arrowroot (gluten-free!) cookie. They dissolve quite nicely, although we still watch her very closely. But it’s great for when the other girls are eating cookies and she wants to be just like them.
Cuddling in the living room watching her sisters play a game. Discovering Christmas!