Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, January 9, 2011

Eating, Jumping, and Being Two

Food is messy and sticky and she loves to explore it.  She will take somewhere from a teaspoon to a tablespoon of food in a day.  We are so thrilled.   Then she signs “done” and we clean up.  This is so exciting for us!!

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The Johnny Jump Up – amazing things you can do when your baby isn’t tethered to a vent!  She will use her left leg to go around and she likes the swinging.  Developmental Services was showing her how to tear paper – she got that one quickly.  LOL.

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And the sign for music.

Since her tubes, she has started to sign.  Her therapist and I have started calling her Bella 2.0.  Who is this amazing, beautiful child?  She is blowing me away!  She has learned almost ten signs in the last 3 weeks.  Good for you Bella!




 jan 9 063She is two.  She explores – this is her trach.  Yes, she pulled it out.  She pulls on everything!  We are getting quite creative on how to keep those exploring fingers away from important things.  Sweet girl.  I am secretly happy – she is full of energy and zest – she is feeling well.  Yeah!    (No worries this was during trach care and it was very quickly put back in, but notice the lack of distress! )

We saw pulmonology this week.  He loves that she is doing so well right now.  Is it the bronch that cleaned out her lungs?  Is it the cyclical antibiotics?  Whatever it is, everyone is happy.  He has grand plans for our sweet girl that involve our tracheal malaysia and chronic lung disease and pulmonary hypertension all behaving and giving this girl a more normal life.  As I say, we’ll see.  Bella writes her own book.  We just get to come along and enjoy the journey.


Lacey said...

You know what I think, she is getting bigger and stronger! She continues to amaze me. Eating a teaspoon when she hasn't touched food. Wow!!
And look at her standing! Such a big girl.
I wish Jax could tolerate his trach being out. He panics and doesn't breath at all!

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