Sweet Bella – ultrasound of her liver showed that it was enlarged. That wasn’t very surprising. It also showed that she has stones in her gallbladder. Ran that by her PCP who told me that it was up to GI, but they probably won’t do anything about it unless it causes a problem.
Had to stop in and see her PCP – we were not doing well and headed to sick. So two meds later, we are seeing an improvement. It has been really cold – and that wheezing. Ick. We got our hands on an inline passy-muir valve. Her other passy-muir valve she has to be off the vent to use. That just isn’t happening right now. But this one you can use while using the vent. Now that her antibiotics are kicking in her secretions are more manageable and she is able to use it! She loves to make noise! I about need a valium every time we use it, though. But I am getting used to it and she is getting used to it.
In other news, this kid is so excited to move! She is learning to dance – her version, a little wiggling of the shoulders and sometimes the trunk. So fun to watch! And that mat is coming through again. She is scooting – she is using momentum to scoot that little bottom across her mat to reach toys! So thrilling to witness!