Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, November 13, 2011

Tis the Season

that I am grateful for:IMG_5721

  • Xopenex
  • Inhaled Steriods
  • Oxygen Concentrators
  • Night nurses
  • Ventilators
  • CPT

The weather is crazy, so it follows that Bella’s lungs are crazy.  Oh well.  Grateful we have all of these things to keep Bella home and OUT of the hospital.

Isn’t this fun?  It was a birthday present from Miss Kaci, her nurse.  Those are melted crayons.

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Wonder of wonders!!!  PT caught her on a good day and look at the miracle!  With the PT and nurse following behind with all of the equipment and me out in front with the ipad showing Signing Time, Bella propelled her way three times around the house!!  It’s all about motivation.  It’s time for a gait trainer!  I am so proud!

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A rare moment off the vent, grab the camera.  My two sweet sisters:

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Monthly labs.  We brought along the ipad to keep us occupied. and distracted.Nov 13 003

She was supposed to start her homebound school this week, but she had too many fevers, so we had to cancel.  Hoping this is a good week! (and that her teacher is nice and loves her!)

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