Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, December 11, 2011

Bella’s Week

Just like everyone else, she is a junky, wheezy kid.  Tis the season!

She just loves her CPT! 

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Huge!!! A first drink!  (There was about a drop of water in that cup, but still!!!)  Wahoo!

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Eating carrots…she gets so excited and then eats maybe a teaspoon.  Oh well, it’s a start.

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Then feeding therapy turns into play time

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Hanging out with sister!  Love that smile!

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december 11 001She’s been doing a lot of sleeping of late – I blame all of the congestion!  We are slowly increasing her feeding rate in her G during the day.  Wow – I forgot how much she doesn’t like change.  For the second time in two weeks, the ER was mentioned for this bloated tummy.  But I vetoed that.  I stopped her feed, put her on pedialyte, gave her some meds, and hoped for the best.  Poor thing.  She worked through all that gas again.  I hate that each tiny change plays havoc with her system.  We are back to distended, but not hard.  We’ll figure it out together Bell.

A new experiment.  I haven’t been that pleased with her homebound teacher.  So I’ve decided to do a lot of supplementing.  I am so excited!  I spent the weekend gathering stuff for us to do school.  She is such a sponge.  More books and time together?  Sounds wonderful!

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