Bella’s Week

Things are good here.  We are still pushing Bella to see what she can do and she is soaring!  Oxygen only occasionally, vent during sleeping and only occasionally while awake.  Wahoo!

Cuddles and outside time – sliding, jumping and playing with brother

Playing on the Wii with sisters.  You can’t see it because I didn’t take video, but she was jumping and dancing to the beat.

Music therapy

Being cute!                                                               Playing piano

Dancing with Jessi – if you stop, she’ll grab your fingers and have you start again!

Making Mat Man in OT.  She was saying a couple of the words!  We are all so curious if she will start vocalizing once she is capped and then decannulated.

When Bella won’t sleep for me, she will always go to sleep for Daddy!  How thankful I am for him – especially after long days! He is so tired in that picture.             Another Bella first – a bath in the tub.  Normally the nurses and I just bathe her in the sink.  She is tiny and still fits.  But we are thinking in a forward direction these days, so I plopped her in the tub with her sister, being careful of her trach for course.  Fun!

 

Now that I have accepted that decannulation is in our future, I want it.  Our next steps are capping during the day and staying off the vent while sleeping.  So I tried a small nap this afternoon.  Stats of 97, Heart rate from 67 to 119.  Pretty impressive little one!