Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Sunday, May 20, 2012

Bella’s Week

Being normal – going outside, spilling whole boxes of cereal on the floor.  So fun!

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Music therapy – only two more weeks till school is out  We are going to miss this!

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May 20 036ST – She is liking the idea of eating.  Biting and chewing, not so much.  Those are our next goals in eating therapy.

 

 

 

 

Cool sequence.  PT wants her to stand up so badly!

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  I had to take this picture.  I am actually starting to believe that this machine might leave my house.  For good.  The idea of no life support.  Awesome!

 

 

Bella has been having some periodic pain.  It attacks at various times and is relentless.  She screams, “n-ah, n-ah, n-ah.” (Her version of “No!”)  She is inconsolable.  It has woken her up from sleep.  It has stopped her during the day.  After about 30 minutes to 1 1/2 hours later, she’ll settle down and go back to normal.  I want to rule out her gallbladder.  She has many gall stones, but they won’t treat until she becomes symptomatic.  So this coming week we have blood tests and an ultrasound.  We’ll see what we find.  Hoping we can figure it out and get this stopped!

4 comments:

Donna Leavitt said...

She looked so good today. Sometimes, I can't believe how far she has come recently. I am so happy for you guys! Thanks again for coming out to wish us a happy birthday. you made our day.

Anonymous said...

I had gallstones beginning in my childhood and finally had my gallbladder removed at 19. It is incredibly painful. I hope that you find out if this is Bella's problem quickly and she starts feeling better soon.

Zoey's mom, Heather said...

The trampoline ... oh my gosh, that nearly made me cry. So 'normal'... what ever normal is these days.

And yes that machine will leave. In it's own time. In Bella's own time. And not one moment too soon cuz we sure don't want to ever see it again.

I hate when they are in pain and have no way to tell us what it is. That lack of communication still is one of the hardest things for me. Makes me feel so helpless when I know she is hurting or wants something and I have no idea how to help her. Zoey gets, what we think, are nasty little bouts of gas pains. She just sobs. No way of knowing for sure but we think that is what it is. Maybe the same for Bella or yes, maybe that pesky gallbladder.

Love to you all and that wonder girl for yours.

Lacey said...

Jaxson went through a period where he would cry for hours! I knew it was pain, but had no idea where! It broke my heart! I can't believe how tall she looks standing so big, i love it!!