Being normal – going outside, spilling whole boxes of cereal on the floor. So fun!
Music therapy – only two more weeks till school is out We are going to miss this!
Cool sequence. PT wants her to stand up so badly!
I had to take this picture. I am actually starting to believe that this machine might leave my house. For good. The idea of no life support. Awesome!
Bella has been having some periodic pain. It attacks at various times and is relentless. She screams, “n-ah, n-ah, n-ah.” (Her version of “No!”) She is inconsolable. It has woken her up from sleep. It has stopped her during the day. After about 30 minutes to 1 1/2 hours later, she’ll settle down and go back to normal. I want to rule out her gallbladder. She has many gall stones, but they won’t treat until she becomes symptomatic. So this coming week we have blood tests and an ultrasound. We’ll see what we find. Hoping we can figure it out and get this stopped!