Bella – she loves this shirt. It says, “I love Grandpa.” When I told her that, she started patting her shirt and saying “gan pa” and then “gan ma.” She loves her Grandparents!
On days we don’t have a day nurse, she joins us during school, she works hard! :)
Playing with Brother.
Working hard in PT – Joy showing her how it’s done! OK, but only for a few steps!
Tuesday morning, I woke to find this. (Notice the balloon is still fully inflated – ouch!))
Her stoma was too closed for me to put it back in. So my Tuesday plans were changed. Bella has taught me to be f-l-e-x-i-b-l-e! We spent some time visiting the pediatrician, calling GI and pedi surg clinics and finally ended up in the ER where pedi surg had to re-insert her g-button.
Sammi and Bella playing on the Wii. Sammi told me she is working on her relationship with Bella. She knows the nursing hours are decreasing and feels she needs to get to know Bella better so she can help more. Seriously? How did I get this angel? Love ya Sam!
Playing in the blocks
Friday night, Jason, Bella, and I went to dinner. We tried Fried Ice Cream. Bella would taste it and then spit it out. :)
A little oxygen at night – so grateful for my concentrator and that we can do this OUT OF THE HOSPITAL! I’m feeling so bad for Cammie! Wondering about the neb mask? Well, she WILL NOT tolerate the nasal cannula, so we work with what we have.