Pulmonology and the intensivists agree that her story is classic of pulmonary hypertensive crisises. They want an ECHO. Besides looking at the heart function, it can help measure pulmonary hypertension. As a guideline, sildenafil is 1ml per kilo. Our sweet girl has gained 3 kilos in the past 3 months. So, some adjustment seems to be in order.
We need an ECHO. They don’t do ECHOs on the weekends, unless you are in ICU. We are not (thankfully!) So we wait. In the mean time, we are going to get a dose of Lasix (yeah). We have had our EKG and a bunch of labs. It is always our luck to come here on weekends and holidays. :)
A good thing, though. Gross and beautifully simple. After she threw up for the third time, the nurse asked me if we vent her stomach at home. Vent her tummy? Ah! I am an idiot. Of course. We hooked her up and there was gas and tons of bile. Poor sweet thing. I am hoping this will really help in the vomiting department. Do you know how many doctors I have talked to about this? Anyways, I remain hopeful and grateful to our nurse.
3 comments:
Hope she gets better very soon!
Sounds like things are going good, except that you have to wait for the echo. Hoping an easy fix by adjusting meds, and the venting will really help with the vomiting.
Hope she gets better soon. Christopher was on a whopping dose of sildenafil - started @ 27 mg, 4 x's per day weighing 21 lbs. It took about 2 years to resolve the PH. Hang in there! :)
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