On Monday during PT, we talked about how she just can’t do any tummy time with all of her wires. She was doing so well, that I decided she could do a small HME time during therapy. She got to be on her tummy! But we sure did wear her out!
Currently, she is not feeling well. Her temp is elevated. She is struggling with coughing and vomiting. She is so sleepy, but not feeling well enough to rest well.
We have been in communication with Cardiology. They agree with Pulmonology that this is cardiac. They agree with the addition of Lasix and they are trying to fit us into clinic. This is not an emergency, but they feel she needs to be seen.
Sending you love and prayers.
Happy Thanksgiving! Even a little tummy time helps. You must have great cardiologists. Here, they never think its the heart until their intubated and in critical condition. Then they may do something.
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