Bella’s Week

How Bella is doing seems to depend on the weather.  So she is having some good days and some days that need more holding and sleeping.  We got to see our PCP this week.  She put her on two antibiotics.  One strong and short in duration.  One that she will be on for 2 weeks and off for 2 weeks until further notice.  I’m hoping that will help us get through the season.  She also got three x-rays of that troubling knee.  We’ll see.

On to the cuteness.  She has become such a ham!

She is starting to do her version of pulling up – wonderful, exciting, and terrifying!  We have to watch her like a hawk!

Monday is her Swallow Study.  I am freaking out – totally.  I keep reminding myself that she is not the same baby that aspirated on formula and ended up in the ICU for months with aspirate pneumonia.  She is strong.  She is upright.  She is my ever-changing, ever fighting Bella.    (And the ER is just down the hall from where the Swallow Study is done in case anything goes wrong.)  Breathe, Breathe, Breathe.  No one has prescribed me a Valium yet – some days I wonder!    Anyway, we have to bring the food.  She doesn’t eat.  She has never eaten.  Although we eat in front of her and give her tastes of everything – she loves that!  I talked with the dietician as to what food to bring for her Celiac.  So here we are – potato chips (for the cracker), arrowroot cookies (for the cookie), Jell-O (for the pudding), and apple juice (for the juice).  Hopefully everything goes well and we’ll start down the path of learning to eat by mouth!

Developmental Services brought a parachute to play with on Friday – very fun!

This is what she loves – being off the vent and in the living room!  But this 2nd picture is more what I always see – “PICK ME UP!!!!”