Bella has been so happy this week. She has not been doing too well on the breathing side of life, but she doesn’t let that stop her. The weather has been nuts, so she has been all kinds of colors. Getting off the vent didn’t happen much this week. We canceled our endocrine appointment that we have waited over six months for. We just couldn’t take her out looking like she did. I don’t want to be admitted for increased oxygen needs and being blue. It’s the weather – yucky, rainy, wet, bad for kids with yucky lungs weather. It just means she sleeps a lot.
We had the wheelchair guy come out to the house for some adjustments to her chair. Did you know this chair folds flat? I sure didn’t and haven’t for the 14 months we have had it. My poor van and the abuse I have afflicted upon it. I didn’t know whether to kiss the tech or hit him. LOL. Oh well, that will make our many appointments downtown a little easier.
1 comment:
Always smiling! Sometimes I think thats all they know. Even your wheelchair looks more comfy than Jax stroller. I went with a stroller thinking it would be more comfy, and because of the canopy, but he doesn't like it for the long time at Disneyland!
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