Hanging out…Starfall and Signing Time . She learned the sign for movie this week. We are in so much trouble!
Pulling up and learning to color!
The little stinker – the PT builds towers that she has to stand up to knock over. Well, she did that for a while, then she got tired. She sat there on that little stool and surveyed the green box. Then she reached out and lifted the lid – mission accomplished, towers down. I was laughing so hard! Don’t work harder, work smarter, right babe?
Playing with her sisters – some of her looks are so funny!
Hanging out with Daddy Playing in the living room
Sammi had a special thing at church so we decided to bring Bella. It was only her third time there. Such a big girl!
Pretty good week. We are trying to use the Passy-Muir valve more. She tends to huff and puff a lot while on it. I can’t figure out how that is good for her Pulmonary Hypertension (probably isn’t). Thursday she decided she was done with working so hard. We stuck her on the passy and walked into the other room and she turned purple. OK, babe. Message received. The vent is our friend again. So grateful we have it. Breathing is tricky and hard work. Got the memo.
On a side note – some people talk about blue babies. Bella doesn’t do blue. Purple, yes. Gray, yes. Not blue. That’s OK. We all have our favorite colors, right?
Sometimes it seems like Bella is telling me, you handle the breathing and I’ll progress and blow away everyone’s expectations, just don’t push me on the whole breathing thing, ok? Sweet girl.
3 comments:
One amazing girl!!! One amazing family:)
a very smart girl, way to go Bella
Another way they are so similar. Jax doesn't do blue either, but he definitely does purple and gray both! I found a passy with an oxygen connector. My RT is also worried that he will have to work too hard to breath through it. We'll have to stay on the monitor while on that baby!
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