Bella, little Bella. How you are shining this week!
She is getting big – next week she will be three! She is a big girl and she knows it. This trach/vent thing is just slowing her down! She wants off. She wants out of her room. She is ready to live. Too bad her lungs didn’t get the memo! Her nurses and I are wracking our brains trying to come up with ways of entertaining her/ teaching her/doing anything with her to keep her busy and happy.
Let’s go for a walk!
Checking out the Jack O Lanterns Her impressions? This is kinda gross! I’ll pose for a picture, but put me back on the vent quick.
Let’s Swing and watch TV with Daddy
Showing my cousin the very cool Ipad and in the walker for PT
I will lean for Signing Time! Her PT says whatever it takes!
More swinging and playing in the toy box with sister
Then Saturday came and we had no nurse. Which was probably a good thing, because they probably wouldn’t have liked what we did. Our neighbor has a Halloween Carnival every year – and this year I brought Bella. Everyone was so surprised to see her! And off the vent! I kept my distance to keep the stimulation down and we went slow. After a while, she was so tired, breathing super fast, really pulling, so we went home while everyone else enjoyed the rest of the carnival, BUT she went! And she saw. And she enjoyed! It was worth all the medicating we had to do when we got home.
Love ya Bell!
For all you football fans: (Thanks to Daddy!)
2 comments:
Oh Bella, you look so beautiful! I wish we could figure out why those lungs are still so dependent on that darn vent. But so glad that she got out a bit!
It is all about the balance. Trying to figure out how to do the "normal" stuff and then plunging back to the necessary evils .... in Bella's case, the vent. The love/hate relationship she and the rest of you, have with that machine. One day, when you least expect it, she will be kicking that thing to the curb. Just watch.
The pictures at the carnival are so precious. the second to last one ... something about it reminds me of Zoey.
Love your girl so. I think she is simply amazing!
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