Here in Houston it is a million degrees outside. The humidity is at least 600% and the ozone levels are through the roof. These are not optimal conditions for a little one with delicate lungs. We handle this by never leaving or going outside – ever. Period. Except this week. We had to go gets labs, twice. Yuck! Poor thing was stuck and stuck and stuck on Wednesday. They were unsuccessful and couldn’t get any blood – nothing. My poor baby was sobbing. My heart was breaking. It was just bad. I called pulmonology and they said we have to have those labs. Ugh. By the time we got home (we were out less than an hour) her eyes were red and leaking this lovely thick yellow green stuff and she was coughing. And wheezing, well that just about doesn’t stop these days. O2 needs are up. Thursday the doctor started Gent. Friday we went back and they refused to try anything but a heel stick. They squeezed three bullets worth of blood out of her foot. We got our labs, but again by the time we got home she was paying for being out. Saturday the hospital called (never good when they call on the weekend). They didn’t like her glucose of 25 – we need to redo it on Monday. Ugh. Anyone know of a wonderful place to live for little ones like Bell?
Oh – and we have Failure to Thrive back on our list of diagnosis. You gotta grow babe! GI upped her feed rate again. She spit up once, but otherwise is tolerating this new amount.
Through it all, she wants to be held more, but she smiles and loves. Oh Bella – you are amazing! I hope one day to endure my trials as well as you do.
5 comments:
Sweet Bella, sure hope those allergies calm down. Junior reacts so bad to humidity so he can sympathize with you a bit.
Hugs
Sounds like you need to move north! Addy still does not handle heat well either. Her PH is resolved but she absolutely cannot handle the heat and humidity here in Missouri either,we have to leave her out of some things :(
Even struggling,that face,is so beyond precious.
Hoping and praying for a reprieve from the weather and all it brings with it.
Oh Bella Bella, You are so precious. Guess what? I have barely been out this summer in Ohio either. I just go from the house to the car that my mom already has cooled off to the store. It's ok though. I just get to watch more movies.
She still looks chunky enough to me! I thought warm humidity was good for trachs? I know cold is horrible!
Jax loves the vent. He goes to sleep so much faster and sleeps better. I know he breathes so much easier!
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