Joy, my 2 year old, adores Bella. Given the chance, she makes a beeline to Bella and loves her and kisses her. It warms my heart. It makes some of the nurses nervous, but I think it’s good for both of them. :) Love is always a good thing!
I worry that Bella is bored some times. She has therapies and doctor’s appointments. She has a loving family, but during the week when everyone is so busy, she spends her time in her room. She still sleeps a lot – there is a lot going on in that little body. But I wonder…….
My girls are not allowed to touch Bella unless they “goop” their hands (santizer liquid is our goop). They are really good about it. I am so paranoid these days – it’s flu season around here. It’s running through the schools like wild fire. That black box behind the cute 8 year old lovingly holding her little sister is a HEPA filter. I clean with vinegar. Anything to keep my Bella healthy!
Lizzy introduced Bella to bubbles this morning! What fun! What else can we bring in to you little one? How can we make your life more full?
This week we went to the endocrinologist. They ordered tests for her thyroid. She has grown – notice the chub? We want to make sure that she is on the right dosage. They also ordered a test to see if she is making antibodies to her own thyroid. We’ll see. She also needed her monthly liver panel. All of that meant lab. In clinic the lab techs don’t come to you, you must go to them. Did I mention my obsession with germs lately? Do I need to tell you the lab has a very large waiting room full of people? People crawling with germs? ICK! Well, we double checked, but they still won’t come up to clinic for a chronically ill, respiratory compromised little one, but they will let you cut in line (one hour waiting) and escort you straight to a room. Thank you lab and thank you everyone that had to wait longer because of us.
How is the vomiting or emesis as the medical people say? It continues but without blood. Yeah, a step in the right direction. She has vomited 5 times in the last 8 hours. Ugh. We’ll figure it out. Other than that, she is our sweet, wonderful little baby! We love ya Bell!