Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Wednesday, July 1, 2009

Hearing Test

july 1 001Who knew a hearing test could take 2 hours?  The doctor was amazed by her determination and strength to fight sedation.  She said that Bella required as much as she, a grown adult woman, would have required.  It’s a strange feeling – but I’m always so proud of her for fighting.  I know that is crazy, but she is a fighter.  She is strong.  It has saved her life a couple of times.  

The results – borderline normal on the right and mild hearing loss on the left.  Alright.  We will come back to clinic in three months to follow up.

Her eyes (nystagmus) – they scheduled the MRI for today at 5:30, but it also requires sedation and they do not, by policy, sedate a child twice in one day.  So we are going tomorrow morning.

I am learning more and more about our follow-up care.  It is going to be intense!  Sounds like we might be down here once a week.  Big sigh.  There is going to be some serious coordination involved with these next few months.

6 comments:

Anonymous said...

Christopher is the same way with sedation......remember Ketamine is your friend....too bad they don't share with Mommies and Daddies! LOL!

So glad to see her doing sooooo much better. Hugs!

Steph and Christopher

amysue said...

I love reading your posts about Arabella, Lauren and I think about her all the time.

maniamam said...

Not long now. I'm glad your feeling confident! You're doing great Bella!
Krsytal

maniamam said...

Not long now. I'm glad your feeling confident! You're doing great Bella!
Krsytal

Lacey said...

I went to this new mamma's blog to. I told her congrats. It amazes me to how different they can be. They little ones who visited us yesterday are all very healthy. One had his AV canal surgery and has done great. Then there are us that have everything that can go wrong will. Thats ok, their fighters.

Michelle said...

So glad she is a fighter...Preslie fights her sedation like crazy too...good girls! Keep fighting sweet Bella and sweet mama!