Tomorrow between 9 and 10 is our anticipated discharge! So exciting! So thrilling! Now there is so much housekeeping to do. Most of her meds are ready and waiting at our neighborhood pharmacy. 4 month shots are scheduled for tomorrow. I brought my little medication spreadsheet over to rounds and we realigned some of her meds so she’ll only get meds six times a day, rather than 10 – easier for me. OT and PT company has been identified. Nursing will start tomorrow. Supplies are supposed to come today. I received my final training on all the equipment today. Wahoo!
She looks fabulous! The doctor says she looks like a normal kid. She had them all cooing as she smiled her melt-you-heart smile this morning. :) My prayer is that we stay out of here for a long time! They reassured me that Dr. Penny Lewis, who will be her Primary Care Physician, is excellent. She used to be an Intensivist herself. She actually trained our current Attending. They saw a huge need for a PCP for kids with multiple medical needs and so the Special Needs Clinic was born. They tell me that she is really good about working with parents to keep them out of the hospital and doing as much as possible at home. Fantastic!
Happy 8th Month Birthday little one!
We are going to miss so many wonderful people here. People keep stopping by to wish us well. Bella has been here a long time.
What a busy day it has been! I can’t remember such a busy day! People in and out giving us forms and setting up so many follow-up appointments. Here she is having her car seat test.
I have been cleaning up her room. I want to take home as much stuff as possible tonight.
Her room was definitely bright and cheerful!
Till tomorrow….thank you for your prayers.
Woo hoo!!! Yeah Bella!
I am so thankful that all of those prayers and worry and love are paying off and she gets to go home! Yeah for Bella and yeah for me - I get to meet her on Friday! I am so very excited about that.
Congrats, we will be praying that everything goes smoothly.
Oh i'm so excited, the day is finally here. I remember trying to get ready to go home after 4 months. So many meds and new machines. Plus 4 months of "bingo" prices and gifts. I had to take a bunch of stuff home the night before so I had room for him the next day. Give her a big kiss from me and Jax.
Well,Miss Bella you did it.Your way.His time and we all could not anymore thrilled.What a day tomorrow will be.Praying for you and your beautiful family.We cannot wait to watch you grow and thrive at home and boy will you ever.It has been simply amazing to watch you change and emerge and now to finally spread your wings.Slow and Steady little one,it always wins the race.
That's such good news! I hope you can stay at home with her a loooong time!
All the best,
That is SO awesome!!! Good luck w/all the adjustments to being home.
I'm so happy for you guys! Good luck with everything at home, I'll keep you in my prayers. What a cutie.
This is so exciting... you should be being discharged about now! I can see you singing the "Freedom" song as you are driving down the freeway! What a great trip to be able to make today WITH the baby in tow! It is NO coincidence that today is 7/7! What a lucky day - we even got the rain that we really need! We will be praying for you that your next several days will transition smoothly! What a wonderful blessing... welcome home Bella!
I'm so happy to hear you are going home!
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