Tomorrow between 9 and 10 is our anticipated discharge! So exciting! So thrilling! Now there is so much housekeeping to do. Most of her meds are ready and waiting at our neighborhood pharmacy. 4 month shots are scheduled for tomorrow. I brought my little medication spreadsheet over to rounds and we realigned some of her meds so she’ll only get meds six times a day, rather than 10 – easier for me. OT and PT company has been identified. Nursing will start tomorrow. Supplies are supposed to come today. I received my final training on all the equipment today. Wahoo!
She looks fabulous! The doctor says she looks like a normal kid. She had them all cooing as she smiled her melt-you-heart smile this morning. :) My prayer is that we stay out of here for a long time! They reassured me that Dr. Penny Lewis, who will be her Primary Care Physician, is excellent. She used to be an Intensivist herself. She actually trained our current Attending. They saw a huge need for a PCP for kids with multiple medical needs and so the Special Needs Clinic was born. They tell me that she is really good about working with parents to keep them out of the hospital and doing as much as possible at home. Fantastic!
Happy 8th Month Birthday little one!
We are going to miss so many wonderful people here. People keep stopping by to wish us well. Bella has been here a long time.
What a busy day it has been! I can’t remember such a busy day! People in and out giving us forms and setting up so many follow-up appointments. Here she is having her car seat test.
I have been cleaning up her room. I want to take home as much stuff as possible tonight.
Her room was definitely bright and cheerful!
Till tomorrow….thank you for your prayers.