Another Day at TCH

Bella continues to vomit, although she is feeling better.  She looks good.  She has energy again.  She is playing.  She is beautiful.  But….she is vomiting and there is old, dried blood in it.  This worries me – a lot.  So for the 2nd time this week, Bella headed to TCH.

We had an interesting experience in the waiting room of the Special Needs Clinic.  We arrived a little early and were waiting .  A mother and her baby came out of a clinic.  This baby was so cute!  All of us (me, the nurse, and the EMT) were oohhing and aahing.  He was smiling and loving his Mama.  She must have heard us and looked up.  We are kinda hard to miss.  Our entourage is somewhat impressive.  Bella and all of her equipment on a gurney surrounded by four adults.  She looked up and said, “You don’t know me, but I read your blog.” What?  She quickly explained that she goes to church with my friend Dallas.  Oh!  What a small world we live in!  She came over and said hi to Bella and even noticed Ladybug.  :)Melissa, that little guy is just too cute!  Thanks for saying hi!

After some talking and examining, the doctor ordered an abdominal ultrasound.  Everything checks out there.  Even her liver, though large, looks good.  They looked at her spleen, gallbladder, kidneys, everything.  So they put her on an anti-nausea medicine.  It is Zofran – an anti-nausea  med that they give to people on chemo.   We are going to slowly work back up to normal feeds and see how it goes.  If the vomiting does not stop, she will have to be admitted for further testing – more invasive testing.  Ugh – get better sweet love.

Other than the vomiting, she looks great!  I was walking around, showing her doctor and nurses her x-ray from Wednesday.  She has never had such a good x-ray – ever.  Some people show off their kid’s pictures, I show off x-rays.  :)  I truly believe that the GJ button is the reason her lungs are so happy.  We aren’t aspirating every other second.  Her lungs can do their job.

Here is a video Jason made of our happy girl when we got home tonight.  She doesn’t look sick, does she?

Pictures with Joy and Sammi from yesterday.  They love Bell so much!

Feel free to skip this last bit.  I use this blog for many reasons.  Primarily to communicate with Bella’s family and friends, but also to store some medical information.  Lately, this is how Bella breathes when off the vent and sleepy – she sounds like a kid that has been crying for a really long time.  Something to ponder.  I’m afraid without the vent forcing her to breathe, she might have sleep apnea.  When she is really tired, she barely breathes over the vent.  RR in the 20s.