Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Friday, February 27, 2009


  • current weight 3.95 kg or 8.7 lb  
  • o2 levels same as yesterday

Jason and I will trade positions tonight.  He will move into the hospital and I will move back home.  Sunday night we’ll trade again.

The doctors have rounded.  They are talking about scheduling again, but they have said that for the past 3 mornings.  Reading between the lines I think it’s convincing the surgeons and finding a time slot.  So we’ll see.  They are ordering a CBC  and a chest x-ray – just to make sure she is totally clear of any and every thing.  The cardiologist also wants to do a Ph probe to determine once and for all if she has reflux.  We’ll have to stop her reflux medication before that test.  I think that’s it – they don’t want her to go home because she “decomposes so quickly.”  I loved the imagery in that one!  :(

She is sweating and choking, but otherwise doing pretty well.  They do want her to be able to try at least one bottle a day so she doesn’t lose her ability to suck.  Have no fear – binky woman loves to suck.  So we’ll see how that goes.

The nurses changed out Bella’s NG tube and nasal canula.  She wasn’t pleased, but it’s done now and she is sleeping again.

sleeping bell 001

About 4PM I noticed that Bella was pulling harder to breathe.  So I notified the nurse, who got the resident involved, who got the fellow involved.  Her IOs are off (that means she has taken in more than she has ….how to put this delicately……put out. ) That usually means, for Bella, that it’s collecting in her lungs or around them.   So we added a diuretic (not edecrin, Lynn).  At 7PM I have to say I think we caught it.  She has had an output of 56 cc’s since 4PM and her respiration is down to an acceptable level again.  Yeah Bella!

1 comment:

Kristin said...

I'm so glad you got a date night this week! It's fun to see the creative ways you're managing to entertain yourself while you're there (the fun hairdos and pictures of Arabella's cute body). To me, that's proof that you're keeping your spirits up, and you have such a positive attitude about it all. You're awesome!