No Worries

We had a very busy day yesterday and I didn’t have time to post. Sorry.  Bella is well. 

I had my home vent training.  The medical supply company will deliver our boxes and boxes of supplies either Saturday or Monday!!  The dietician sat down with me to explain how to mix up her strange diet.  :)  She had OT and PT in the morning.  Here she is doing her best to sleep through OT.  :)

 

Bella had her MRI.  Normally she comes out of sedation happy and smiling.  They used a gas to sedate her this time, and while she went under quickly, she did not wake up happy.  She fussed and cried.  She even spit up and with a fundo that’s pretty significant.   Jessi sang and sang to her – very sweet!

  

But what really kept us busy was my sister broke her femur on Wednesday night.  They went to the local ER, and were then transported down here to TCH.  Mandy had to have surgery to put a pin in her bone.  While she was waiting during the 3 hour surgery, my Mom came up and visited with Bella.  Here are Jessi and Mandy after the surgery.

 

That brings us to today.  This morning I brought up the car seat.  She needs a car seat test to get out of here – just like the NICU.  Considering she can sit in her tumble form chair for an hour and do well, the car seat test will be fine.  PT does the car seat tests and they are off until Monday.  So that will be our last thing on Monday to do before our checklist will be complete – yeah!

This morning after her bath and care.   She just loves her kisses during bath time.   :)   I thought we would try a head wrap.  They are still a bit big on her.  That is one finding of the MRI – small head.  She isn’t disproportional, she’s just a little thing.  But her biological mother and sister have petite frames, so I’m not worried.  The MRI showed no abnormalities that would account for the eye movements.  So I’m expecting the eye doctors to simply say, “we’ll watch it.”  One more thing to follow up with outpatient.  We’ll see for sure on Monday when everyone comes back to work.   We will lose our PICC line today.  The doctor has also increased her corn oil – they want her to grow, grow, grow!  Her sildenafil has also been increased.  Still looking for Tuesday!