Friday

Friday - Today's goals: extubate and schedule surgery The results came back from the yuck they were suctioning out of her breathing tube. There are no viral indicators or RSV, but there is something growing down there, group A Strep. They are going to start her on augmentin (love it when I know a drug they are talking about).



Today's Outcomes: extubated and scheduled


She is now extubated. She is back on the nasal something. It looks like a c-pap. She is breathing a little rapidly(her norm), but staying at good saturation levels. She is scheduled tentatively for Wednesday. The best and the worst news - our daughter's heart will be repaired! Our daughter will undergo major open heart surgery and she will have to fight (again) to heal. But then, hopefully, she'll go home. She'll get to really meet her family and they can really meet her. And she can learn what life is like OUTSIDE of the hospital.

In other news, the kidney doctor came by. I learned that she'll be on dialysis for a couple days post-op. It is done differently than for adults. There are going to be so many tubes in this sweet girl. I was able to show them the discharge summary about her kidneys while in the NICU. So now they know and we'll probably do a renal ultrasound pretty soon. Good, because we were supposed to follow that clinically, but it hasn't been a priority.