Good news – looks like we are going home tomorrow!!
Bad news – looks like her heart would like some more attention. She is having regurgitation in her her mitral and tricuspid valves. The mitral valve is more worrisome to us right now because it can cause increased pressures in the lungs. And with pulmonary hypertension, we don’t need any more pressure there. Oh well. It’s another medication and more monitoring.
She lost her IV access (no surprise there. I was shocked she kept it for 2 1/2 days!) so they had to decide. Is she staying awhile, then re-stick her and get access or going home, change her meds to PO. Home won! So assuming all continues to go well, we should be home for the first day of school!
She isn’t all smiles. She is uncomfortable and fussy more than usual. I think it’s either digestion or the site of her GJ tube. The stoma (hole) had to get bigger to go from the G to the GJ tube. It’s pretty red and there’s still a little blood when I clean it. I’m hoping that’ll heal quickly.