We LOVE that she can be off the ventilator some every day now. We put on the HME and she could be in the picture in the living room – yeah for small victories!
OT – she is doing well, but it wears her out. She is exhausted for a few hours after OT. I also find it very interesting- The therapist stimulates her nerves and deep tissues and her nystamus has increased significantly. Not just a little, but a very marked increase – only during and right after therapy. Hmmm….
Sweet Bella. Last night’s nurse hadn’t been here in about a week and he wasn’t pleased. She has so many more secretions. She is working harder to breathe. She is a little puffy in her face. She is sating well, but her heart rate is a little elevated. Her tummy is a little distended. Praying that it's not her liver - or anything for that matter. We’ll see. We go and see her doctor and cardiologist Friday.