We are back from the Upper GI and it shows exactly what I’ve been saying – her fundo is not working. They had 120 cc’s of barium all ready to go to really test her little tummy. It was not needed – after 15 cc’s the barium shot straight up her esophagus and into her oral cavity. Now, what will they do about it? Talking to the attending we have two options. 1. Try to re-do the redone fundoplication. (Third times the charm?) or 2. Get a J-peg. I need to do more research, but from what I understand, her g-button goes straight into her tummy and a J-peg goes straight into the small intestines. There are pros and cons to both. I am talking to a lot of people. We’ll see.
Her OT and PT here have reclaimed her. She has her moving pictures on the ceiling again. Overall, it’s going well. The antibiotics and additional steroids are helping her pneumonia. She hasn’t had a thing to eat since Sunday night’s feeding, so they are really pushing pedi. surgery to hurry up and decide what to do so she can either get TPN or something.
Everyone can’t believe how big she is getting! 6.9 kg and 62 cm