Her chylo-thorax continues, so she is off all food. She is back on TPN (food in a bag). She didn’t like her vent (that is a ventilator, Cyndi – sorry I wasn’t clear) settings, so they are higher. Her NO (nitric oxide) is back up to 5. She is off versed, and on morphine and atavan.
For those who have been here, done that (Cammie, Heather, any others) – I know each kid is different – but I need some parameters here. How long were y’all on the vent? How long till you were home (that mystical place we dream about)? For reference, tomorrow is one week post-op and our pressures were 7 (moderate PH) and a transitional AV Canal. She is 4 months old and been home 11 days. update: I asked one of the cardiology fellows and his prediction is another week up here in ICU.
To be positive, I love watching her breathe. I love watching her chest rise and fall. Slowly, easily, with no retractions. She is breathing at 32 breathes a minute - how beautiful! A month ago it was 80-120 a minute. She no longer looks like she just finished running a marathon. Granted a machine is breathing for her, but it is a beautiful sight to watch her chest.
Volunteers brought her the cutest blanket. It’s so cute. I am grateful for all of these wonderful people who donate to Texas Children’s Hospital and the Ronald McDonald House. These are such blessings to those of us here at the hospital.