I have been so worried. Bella’s respiration rate had increased with mild retractions. I was so worried that we were headed back to the hospital. But I kept watching her pulse which was really good, and her oxygen saturation was in the 90’s. I kept going over her medications that keep her from getting fluid overloaded. I kept thinking of her heart and lungs and how they had showed such improvement lately. And then last night, she vomited all over me! Wonderful! I was so excited and relieved! She wasn’t going into respiratory distress at all. She just has the same bug that the other girls have. Yeah for vomit. I felt so much better. Now all I have to worry about is keeping her hydrated, and with an NG tube, we are doing fine there.
We went to the pediatrician today. He confirmed that she just has a little bug and she is doing really well. He ordered me some more supplies through Apria. I have felt so guilty with feeding her through the NG tube instead of forcing her to eat more. He told me not to feel guilty, and to just give her time. As she gains weight and time passes, she’ll get it.
We have our ECI evaluation scheduled for April 13th. I wanted to get her working with the therapists as soon as possible. We have global developmental delays, a serious head lag, and now we aren’t eating. I found out that Miss Kari (one of Joy’s therapists) will be doing the eval. That is great news! She is a wonderful therapist. I’m looking forward to that!
Oh! I'm so glad. I started to worry when there was no new post and I couldn't get ahold of you. Then the stalking began and I talked to Debbie and got the news. Who would ever think that you would be thankful for the flu?
I just read your blog for the first time today. I have 3 children and live in New Zealand. My youngest child is Luke who is 14 months old with DS.
I hope to keep track of your wee girl :)
Shelly I am so glad to hear that little miss Bella is home safe with her family:) She looks great! I know it'll be a long road but with your families love and adoration for her she will strive greatly, All my prayers for a speedy & healthy recovery for her.
Post a Comment