Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Friday, April 3, 2009

Sleepwalking a Dangerous Line

Sweet Bella.  We are walking a careful line between inpatient and outpatient care at this point.  Her oxygen needs have increased (from 1/8 - 1/4  to 1/4 - 1/2) and her respiration rate has increased.  Her x-ray yesterday showed fluid build up around the right lung and her upper right lobe collapsing again.

Her doctor has increased her diuretics.  Hopefully this is pull some of the liquid out of her.  We go back next week.  If she worsens at all, we go in for IV lasix.

Please pray that the diuretics will work.  This is a constant battle for Arabella.

apr 3 015

 

Jessi helped me get to the doctor.  There is too much equipment for just one Mama!

 

 

I have to add a special thank you to Rachel for watching the kids for me.  This 30-40 minute visit was really two hours long, coupled with the 2 1/2 hours of drive trip, Rachel’s “short” babysitting event just kept getting longer and longer.

The doctor had given me Bella’s new script for her Methadone.  We were running so late that I thought I would fill it on our side of town.  Mistake!!!  I got home and Rachel (the wonderful RN that she is) helped me with getting Bella’s bed to just the right angle and getting the nasal cannula more secure on her face.  Then we talked about the methadone.  I only had one dose left.  Rachel watched the girls and I ran to Walgreens.  Walgreens doesn’t carry Methadone at 1 mg/cc concentration.  They could compound it and that would take 3 days.  We called all over.  No Methadone for babies in North Houston.  So, Rachel stayed with the kids and we drove back down to Texas Children’s Hospital to get drugs for our baby.  What a late night!  Rachel is truly a Saint!  Thank you!

2 comments:

maniamam said...

Will do! how are you holding up?

My name is Sarah said...

This is Joyce. Oh dear, sweet Bella is definately following in our Sarah's footprint. My best advice is to remember to breath with generous exhales, get a good nights sleep whenever you can and don't forget to eat. Advice I ignored and suffered dearly for it a few months later. Praying that things stabilize for Bella and you.