Wonderful News!!

It looks like we are going home tomorrow after all!

I was so worried.  At 3AM, Bella had had no output in a while, she was pretty positive.  The nurses were worried enough to call the resident.  So from 3 AM until now, I have bounced between anger that they would take away her diuretics too quickly and despair that we would never leave here and guilt that Bella needs the very best in care and what was my problem. 

Couple that with the fact that I get maybe four hours of sleep a night here between feeding her, vitals, weighing her, and CPT every couple of hours.  Then there’s the fact that my intake is a little off.  In short I was becoming a mess.

The doctors just rounded.  The attending feels she is doing fine.  She is slightly dehydrated which would account for the reduced output.  The nurses had stopped me from using the NG tube because the doctors had written “ad lib” for her feeds.  During rounds I clarified that.  If she was slightly dehydrated shouldn’t I feed her all she can and then tube the rest to 75 cc’s (2.5 ounces)?  Yes – there had been a miscommunication.  He also explained that as someone is being weaned from diuretics (now lasix every 12 hours and aldectazide every 12 hours), the body can become slightly dehydrated.  He feels that everything will correct itself in time and that she is on the right course.

Today I placed my first NG tube.  It’s not that bad – but my hands were shaking!  Sweet baby.

All the supplies for her oxygen and feedings are at the house.  They just came and removed her PICC line.  We are going home (tomorrow)!!!

Thank you everyone who has commented from the last post.  Your comments have cheered me and helped me wait and wait for rounds.  I so needed that today.  Thank you for your support of our sweet girl.  It means the world to us to know that others are praying and thinking of us.

Thank you!!